Journal of Industrial Convergence (산업융합연구)

DAEHAN Society of Industrial Management (대한산업경영학회)
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The Influence of Family Aggregation with Disabilities on Life Satisfaction: The Mediating Effect of Caregiving Burden

장애가족 가족응집성이 삶 만족에 미치는 영향: 부양부담 매개효과

  • 신경안 (동서울대학교 사회복지학과)
  • Received : 2021.03.31
  • Accepted : 2021.06.20
  • Published : 2021.06.30
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Abstract

The purpose of this study was to determine the effect of family cohesion and burden of support on life satisfaction of disabled families and ultimately support the satisfied life of disabled families. The study investigated the factors that influence the life satisfaction of the disabled family through a questionnaire survey as a disabled family caring for a disabled family. As a result of the study, life satisfaction of families with disabilities was as low as 2.278 on a 5-point scale, and the burden of support was 3.432, indicating that they felt a relatively high burden of support. However, family cohesion was relatively good at 3.664, showing that support to lower the burden of support was needed to increase life satisfaction. Based on these findings, the researcher makes the following suggestions to increase the life satisfaction of disabled families. First, the need for support to alleviate the burden of caregivers for the disabled. Second, expanding support for people with disabilities receiving care. Third, there is a need to strengthen support for families with disabilities. However, as this study was conducted centered on Gyeonggi-do, there is a need for follow-up research as the study has limitations.

본 연구는 장애가족의 가족응집성과 부양부담이 삶 만족에 미치는 영향을 확인하여 궁극적으로 장애가족의 만족한 삶을 지원하고자 하였다. 연구는 장애가족을 돌보는 장애가정으로 설문조사를 통해 장애가족의 삶 만족에 영향을 주는 요인을 조사하였다. 연구결과 장애가족의 삶 만족은 5점척도에서 2.278로 낮게 나타났으며, 부양부담은 3.432로 비교적 높은 부양부담감을 느끼고 있는 것으로 나타났다. 하지만 가족응집성은 3.664로 비교적 양호한 것으로 나타나 삶 만족을 높이기 위해 부양부담을 낮출 수 있는 지원이 필요함을 보여주었다. 이러한 연구결과를 바탕으로 연구자는 장애가족의 삶 만족을 높이기 위해 다음과 같이 제언한다. 첫째, 돌봄자의 장애인 돌봄부담 경감을 위한 지원의 필요. 둘째, 돌봄을 받는 장애인을 위한 지원의 확대. 셋째, 장애인 가족지원 강화의 필요이다. 다만 본 연구는 경기도를 중심으로 이루어진 조사로서 연구의 한계가 있어 후속연구의 필요가 있다.

Keywords

Acknowledgement

This thesis was studied with the support of the Research Support Center affiliated with the Industrial-Academic Cooperation Foundation of Dongseoul University in 2020.

References

  1. K. Y. Kim. (2018). A Study on the Meaning of the Experience of Job for Employed People with Mental Disabilities. Asia Culture Academy of Incorporated Association, 9(3), 77-87. DOI : 10.22143/HSS21.9.3.7
  2. Sari, H. Y., Baser, G. & Turan, J. M. (2006). Experiences of mothers of children with Down syndrome. Pediatric Nursing, 18(4), 29-32. DOI : 10.7748/paed2006.05.18.4.29.c1024
  3. McCubbin. M. A. (1995). The typology model of adjustment and adaptation: a family stress model. Guidance & Counselling, 10(4), 31-37.
  4. J. H. Choi. (1996). Study of the family support porgpam for mother of the infants and toddlers with special needs. Special Education Thesis 13(1), 1-16.
  5. S. M. Chung & M. H. KIM. (2019). The effects of self-determination on quality of life among young adults with intellectual disabilities: An analysis of the moderating effect of family cohesion and family flexibility. Social Welfare Research, 50(4), 151-184. DOI : 10.16999/kasws.2019.50.4.151
  6. C. U. Je & Y. Y. Choi. (2014). Feasibility of the Special Needs Trust Schemes for the protection of Persons with Severe Developmental Disability. The Jounal of Comparative Private Law, 21(3), 1139-1184. DOI : 10.22779/kadw.2017.37.37.5
  7. S. O. Soo & W. I. Cho. (2008). A Qualitative Study on the Maternal Experience and the Qqulity of Life of Mothers with Mentally Disabled Children. Special Child Education Research, 10(3), 319-348. DOI : 10.21075/kacsn.2008.10.3.319
  8. Olson, D. H. (1986). Circumplex Model VII: validation studies and FACES III. Family Process, 25(3), 337-388. DOI : 10.1111/j.1545-5300.1986.00337.x
  9. Pozo, P., Sarria, E. & Brioso, A. (2014). Family quality of life and psychological well-being in parents of children with autism disorders: a double ABCX model. Journal of intellectual Disability Research, 58(5), 442-458. DOI : 10.1111/jir.12042
  10. Olsen, D. H., Russell, C. S. & Sprenkle, D. H. (1983). Circumplex model of marital and family systems: VI. Theoretical update. Family Process, 22(1), 69-83. DOI : 10.1111/j.1545-5300.1983.00069.x
  11. King, L. A., Scollon, C. K., Ramsey, C. & Williams, T. (2006). Stories of life transition: Subjective well-being and ego development in parents of children with Down syndrome. Journal of Research in Personality, 34, 509-536. DOI : 10.1006/jrpe.2000.2285
  12. J. S. Kim & K. A. Shin. (2020). The Effect of Family Cohesion of Down's Syndrome Family on Children's Independent LivinE: Focused on Mediating Effect : Mediating effect of strengthening family capacity, Journal of Convergence for Information Technology, 10(8), 213-222. DOI : 10.22156/CS4SMB.2020.10.08.213
  13. Diener, E. (2000). Subjective well-being. The science of happiness and a proposal for a national index. American Psychologist, 25(1), 34-43. DOI : 10.1037/0003-066X.55.1.34
  14. Bradley, R. H. & Corwyn, R. F. (2004). Life satisfaction among European American, African American, Chinese American, Mexican American, and Dominican American adolescents. International Journal of Behavioral Development, 28(5), 385-400. DOI : 10.1080/01650250444000072
  15. S. K. Kang. (2002). The Impacts of the Attitudes, Stress Coping, and Social Supports of Parents with Handicapped Children upon the Life Satisfaction of the Parents. Mental Health and Social Work, 14, 7-35.
  16. S. K. Park, S. M. Kim & S. W. Lee. (2018). The Effects of cultural and leisure activities on maintaining positive interpersonal relationship and daily-life satisfaction among adults with developmental disabilities. Journal of Disability and Welfare, 40, 123-149. DOI : 10.22779/kadw.2018.40.40.123
  17. Hastings, R. P. & Taunt, H. M. (2002). Positive Perceptions in Families of Children with Developmental Disabilities. American Journal of Mental Retardation, 107, 116-127. DOI : 10.1352/0895-8017(2002)107<0116:PPIFOC>2.0.CO;2
  18. J. Y. Park & J. Y. Jang. (2014). The Impact of Optimis of Parents of Children with Disabilities on Life Satisfaction: The Mediating Effects of Positive Perception of Parenting Children and Coping Behavior. Special Education Research, 49(3), 121-144. DOI : 10.15861/kjse.2014.49.3.121
  19. Pearlin, L. l., Mullan, J. T., Semple, S, J & Skaff, N. (1990). Caregiving and the stress process: An overview of concepts and their measures, The Gerontologist, 30(5), 583-594. DOI : 10.1093/geront/30.5.583
  20. Daly, M. & Lewis, J. (2000). The concept of social care and the analysis of contemporary welfare state. The British Journal of Sociology, 51(2), 281-298. DOI : 10.1111/j.1468-4446.2000.00281.x
  21. H. R. Jang & T. W. Um. (2019). Factors Affecting the Quality of Life of Parents with Developmental Disabilities. The Journal of the Korean Association on Developmental Disabilities, 23(3), 25-69. DOI : 10.34262/kadd.2019.23.3.49
  22. Crnic, K. A., Greenberg. M. T., Ragozin, A. S & Robinson, N. M. (1984). Maternal stress and social support: Effects on the mother-infant relationship from birth to eighteen months. American Journal of Orthopsy chiatry. 54(2). 224-235. DOI : 10.1111/j.1939-0025.1984.tb01490.x
  23. Y. R. Lee & N. J. Kim. (2016). A study on the factors of convergent caring competency for promotion of caregivers' wellness of disabled children. Digital Convergence Research, 14(2), 479-487. DOI : 10.14400/JDC.2016.14.2.479
  24. S. K. Shin, Y. A. Lee & D. H. Kim. (2020). A study on the realization of community care for the developmentally disabled : Focusing on Japanese community practice, Industrial Convergence Research, 18(5), 88-96. DOI : 10.14400/JDC.2020.18.6.531
  25. Burgess, A. F. & Gutstein, S. E. (2007). Quality of life for people with autism: Raising the standard for evaluating successful outcomes. Child and Adolescent Mental Health, 12(2), 80-86. DOI : 10.1111/j.1475-3588.2006.00432.x