DOI QR코드

DOI QR Code

Effect of Home Activity Support Program on Daily Living Performance Skills in Children with Cerebral Palsy and their Parents

  • Ko, Seok-Ho (Dobong General Welfare Center For The Disabled) ;
  • Kim, Jae-Eun (Department of Physical Therapy, Gumi University) ;
  • Koo, Jung-Wan (The Catholic University of Korea, Seoul ST. Mary's Hospital)
  • Received : 2021.12.14
  • Accepted : 2022.03.08
  • Published : 2022.03.31

Abstract

Objective: This study attempted to find out if it changes the child's ability to perform daily life activities when visiting the familiar environment and daily living space of children with cerebral palsy and conducting a home activity support program for children and parents. Design: Randomized Controlled Trial Methods: Among 22 children aged 3 to 12 years old, they were assigned to the intervention group and control group. Of these, 12 boys and 10 girls participated in the study. Gross motor function measure and upper extremity function evaluation were used to measure the physical function of children with cerebral palsy, and self-care skills, mobility and social functions were evaluated in the pediatric evaluation of disability inventory. In addition, a parenting sense of competence was used to find out the efficacy of parents in raising children. After the pre-evaluation, basic rehabilitation treatment and intervention programs were applied to the intervention group, and only basic rehabilitation treatment was performed to the control group, and post-evaluation was performed 8 weeks later. Results: As a result of the study, among the items that measured the gross motor function, upper limb function, and daily life performance ability of the intervention group in the difference between the intervention group and the control group, statistically improved in personal processing and movement (p<0.05). In addition, the parenting sense of competence children in the intervention group was statistically significant (p<0.05). Conclusions: The home activity support program will help strengthen the ability of cerebral palsy children to perform daily life as a way to set mutually agreed goals with their families or children and achieve them in a familiar environment.

Keywords

References

  1. Cho Y, Hummer RA, Choi Y-J, Jung SW. Late childbearing and changing risks of adverse birth outcomes in Korea. Matern Child Health J. 2011;15(4):431-7. https://doi.org/10.1007/s10995-010-0611-x
  2. Spittle AJ, Morgan C, Olsen JE, Novak I, Cheong JL. Early diagnosis and treatment of cerebral palsy in children with a history of preterm birth. Clin Perinatol. 2018;45(3):409-20. https://doi.org/10.1016/j.clp.2018.05.011
  3. Bax M, Goldstein M, Rosenbaum P, Leviton A, Paneth N, Dan B, et al. Proposed definition and classification of cerebral palsy, April 2005. Developmental medicine and child neurology. 2005;47(8):571-6. https://doi.org/10.1017/S001216220500112X
  4. Novak I, Morgan C, Adde L, Blackman J, Boyd RN, Brunstrom-Hernandez J, et al. Early, accurate diagnosis and early intervention in cerebral palsy: advances in diagnosis and treatment. JAMA pediatrics. 2017;171(9):897-907. https://doi.org/10.1001/jamapediatrics.2017.1689
  5. King S, Teplicky R, King G, Rosenbaum P, editors. Family-centered service for children with cerebral palsy and their families: a review of the literature. Semin Pediatr Neurol; 2004: Elsevier.
  6. Hostler SL. Pediatric family-centered rehabilitation. J Head Trauma Rehabil. 1999;14(4):384-93. https://doi.org/10.1097/00001199-199908000-00007
  7. Palisano RJ. A collaborative model of service delivery for children with movement disorders: a framework for evidence-based decision making. Phys Ther. 2006;86(9):1295-305. https://doi.org/10.2522/ptj.20050348
  8. Campbell SK, Palisano RJ, Vander Linden DW. Physical therapy for children: Saunders; 2006.
  9. Novak I, Cusick A, Lannin N. Occupational therapy home programs for cerebral palsy: double-blind, randomized, controlled trial. Pediatrics. 2009;124(4):e606-e14. https://doi.org/10.1542/peds.2009-0288
  10. Novak I, Cusick A, Lowe K. A pilot study on the impact of occupational therapy home programming for young children with cerebral palsy. Am J Occup Ther. 2007;61(4):463-8. https://doi.org/10.5014/ajot.61.4.463
  11. Law M, Hanna S, King G, Hurley P, King S, Kertoy M, et al. Factors affecting family-entred service delivery for children with disabilities. Child Care Health Dev. 2003;29(5):357-66. https://doi.org/10.1046/j.1365-2214.2003.00351.x
  12. OstensjO S, Oien I, Fallang B. Goal-oriented rehabilitation of preschoolers with cerebral palsy-a multi-case study of combined use of the Canadian Occupational Performance Measure (COPM) and the Goal Attainment Scaling (GAS). Dev Neurorehabil. 2008;11(4):252-9. https://doi.org/10.1080/17518420802525500
  13. Bang Y. The change of activity of daily living on task-oriented learning program in young adult with cerebral palsy. The Journal of Korean Society of Occupational Therapy. 2003;11:87-99.
  14. James S, Ziviani J, Boyd R. A systematic review of activities of daily living measures for children and adolescents with cerebral palsy. Dev Med Child Neurol. 2014;56(3):233-44. https://doi.org/10.1111/dmcn.12226
  15. Friedman M, Woods J, Salisbury C. Caregiver coaching strategies for early intervention providers: Moving toward operational definitions. Infants & Young Children. 2012;25(1):62-82. https://doi.org/10.1097/IYC.0b013e31823d8f12
  16. Still JR. Mini-councils: A solution to fieldwork supervision. American Journal of Occupational Therapy. 1982;36(5):328-32. https://doi.org/10.5014/ajot.36.5.328
  17. Palisano RJ, Hanna SE, Rosenbaum PL, Russell DJ, Walter SD, Wood EP, et al. Validation of a model of gross motor function for children with cerebral palsy. Phys Ther. 2000;80(10):974-85. https://doi.org/10.1093/ptj/80.10.974
  18. Russell DJ, Rosenbaum P, Wright M, Avery LM. Gross motor function measure (GMFM-66 & GMFM-88) users manual: Mac keith press; 2002.
  19. DeMatteo C, Law M, Russell D, Pollock N, Rosenbaum P, Walter S. The reliability and validity of the Quality of Upper Extremity Skills Test. Physical & Occupational Therapy in Pediatrics. 1993;13(2):1-18.
  20. Thorley M, Lannin N, Cusick A, Novak I, Boyd R. Reliability of the quality of upper extremity skills test for children with cerebral palsy aged 2 to 12 years. Phys Occup Ther Pediatr. 2012;32(1):4-21. https://doi.org/10.3109/01942638.2011.602389
  21. Feldman AB, Haley SM, Coryell J. Concurrent and construct validity of the Pediatric Evaluation of Disability Inventory. Physical therapy. 1990;70(10):602-10. https://doi.org/10.1093/ptj/70.10.602
  22. Brew S, Langan E, Link-Dudek A, Walsh R, Ehrlich-Jones L. Measurement characteristics and clinical utility of the pediatric evaluation of disability inventory in children with cerebral palsy. Archives of Physical Medicine and Rehabilitation. 2018;99(6):1251-2. https://doi.org/10.1016/j.apmr.2018.02.006
  23. 신숙재, 정문자. 어머니의 양육 스트레스, 사회적 지원과 부모효능감이 양육행동에 미치는 영향. 아동학회지. 1998;19(1):27-42.
  24. 이소현. 장애 영유아 지원 체계 구축을 위한 질적 구성요소-정책적 제도 수립을 위한 기초 연구. 유아특수교육연구. 2006;6:83-107.
  25. Novak I, Cusick A. Home programmes in paediatric occupational therapy for children with cerebral palsy: where to start? Australian Occupational Therapy Journal. 2006;53(4):251-64. https://doi.org/10.1111/j.1440-1630.2006.00577.x
  26. Kemp P, Turnbull AP. Coaching with parents in early intervention: An interdisciplinary research synthesis. Infants & Young Children. 2014;27(4):305-24. https://doi.org/10.1097/IYC.0000000000000018
  27. Campbell PH, Sawyer LB. Supporting learning opportunities in natural settings through participation-based services. Journal of Early Intervention. 2007;29(4):287-305. https://doi.org/10.1177/105381510702900402
  28. 최유진, 김경미, 신용범, 장문영. 신경발달치료 (NDT)원리에 기초한 일상생활활동 훈련이 뇌성마비 아동의 작업 (occupations) 에 미치는 효과. 대한작업치료학회지. 2011;19(1):55-67.
  29. 김장곤. 뇌성마비 아동에 대한 가족중심의 가정물리치료 프로그램의 효과. 서울: 가톨릭대학교 대학원; 2013.
  30. 박아름, 이재신. 뇌성마비 아동의 신체기능 및 일상생활 향상을 위해 적용된 과제 중심 훈련의 체계적 고찰. 대한감각통합치료학회지. 2021;19(1):54-68.