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End-of-Life Planning and the Influence of Socioeconomic Status among Black Americans: A Systematic Review

  • Received : 2023.09.02
  • Accepted : 2024.01.30
  • Published : 2024.03.01

Abstract

Purpose: The purpose of this systematic review is to explore end-of-life (EOL) care planning and the impact of socioeconomic status (SES) among people who identify as Black or African American. Methods: The Preferred Reporting Items for Systematic Reviews and Meta-analyses (PRISMA) were used to guide and inform this systematic review process. The following academic electronic databases with publications that reflected the interdisciplinary fields related to the research objective were searched: APA PsycINFO, CINHAL, PubMed, Scopus, and Social Work Abstracts. Results: After the authors conducted the search, 14 articles (from 13 studies) ultimately met the criteria for inclusion. The results substantiated significant concerns highlighted in previous literature regarding SES and its relation to EOL planning, but also revealed an absence of original work and interventions to increase engagement in EOL planning among Black and African American populations. Conclusion: Black individuals deserve an equitable EOL experience. Researchers, practitioners, and policymakers need to move towards advocacy and action to meet this important need.

Keywords

References

  1. Javed Z, Haisum Maqsood M, Yahya T, Amin Z, Acquah I, Valero-Elizondo J, et al. Race, racism, and cardiovascular health: applying social determinants of health framework to racial/ethnic disparities in cardiovascular disease. Circ Cardiovasc Qual Outcomes 2022;15:e007917. 
  2. Sloane PD, Yearby R, Konetzka RT, Li Y, Espinoza R, Zimmerman S. Addressing systemic racism in nursing homes: a time for action. J Am Med Dir Assoc 2021;22:886-92.  https://doi.org/10.1016/j.jamda.2021.02.023
  3. Arias E, Tejada-Vera B, Kochanek KD, Ahmad FB. Provisional life expectancy estimates for 2021: Vital Statistics Rapid Release, 2021: 23. 
  4. Orlovic M, Smith K, Mossialos E. Racial and ethnic differences in end-of-life care in the United States: evidence from the Health and Retirement Study (HRS). SSM Popul Health 2018;7:100331. 
  5. Nouri S, Lyles CR, Rubinsky AD, Patel K, Fields DR, DeRouen MC, et al. Evaluation of neighborhood socioeconomic characteristics and advance care planning among older adults. JAMA Netw Open 2020;3:e2029063. 
  6. Bailey ZD, Krieger N, Agenor M, Graces J, Linos, N, Bassett MT. Structural racism and health inequities in the USA: evidence and interventions. Lancet 2017; 389:1453-63.  https://doi.org/10.1016/S0140-6736(17)30569-X
  7. Masters JL, Toller PM, Kelley NJ, Holley LM. Begin with the end in mind: A three-part workshop series to facilitate end-of-life discussions with members of the community. Gerontol Geriatr Educ 2020;41:430-46.  https://doi.org/10.1080/02701960.2018.1446005
  8. Estrada LV, Agarwal M, Stone PW. Racial/ethnic disparities in nursing home end-of-life care: a systematic review. J Am Med Dir Assoc 2021;22:279-90.  https://doi.org/10.1016/j.jamda.2020.12.005
  9. Ko E, Lee J. Completion of advance directives among low-income older adults: does race/ethnicity matter? Am J Hosp Palliat Care 2014;31:247-53.  https://doi.org/10.1177/1049909113486170
  10. Jenkins C, Lapelle N, Zapka JG, Kurent JE. End-of-life care and African Americans: voices from the community. J Palliat Med 2005;8:585-92.  https://doi.org/10.1089/jpm.2005.8.585
  11. Bazargan M, Cobb S, Assari S, Bazargan-Hejazi S. Preparedness for serious illnesses: impact of ethnicity, mistrust, perceived discrimination, and health communication. Am J Hosp Palliat Care 2022;39:461-71.  https://doi.org/10.1177/10499091211036885
  12. Griffith DM, Mason M, Yonas M, End E, Jeffries V, Plihcik S, et al. Dismantling institutional racism: theory and action. Am J Community Psychol 2007;39:381-92.  https://doi.org/10.1007/s10464-007-9117-0
  13. Bazargan M, Cobb S, Assari S. End-of-life wishes among non-Hispanic Black and White middle-aged and older adults. J Racial Ethn Health Disparities 2021;8:1168-77.  https://doi.org/10.1007/s40615-020-00873-w
  14. Nedjat-Haiem FR, Carrion IV, Gonzalez K, Quintana A, Elk K, O'Connell M, et al. Implementing an advance care planning intervention in community settings with older Latinos: a feasibility study. J Palliat Med 2017;20:984-93.  https://doi.org/10.1089/jpm.2016.0504
  15. Rhodes RL, Elwood B, Lee SC, Tiro JA, Halm EA, Skinner CS. The desires of their hearts: the multidisciplinary perspectives of African Americans on end-of-life care in the African American community. Am J Hosp Palliat Care 2017;34:510-7.  https://doi.org/10.1177/1049909116631776
  16. Noh H, Kim J, Sims OT, JI S, Sawyer P. Racial differences in associations of perceived health and social and physical activities with advance care planning, end-of-life concerns, and hospice knowledge. Am J Hosp Palliat Care 2018;35:34-40.  https://doi.org/10.1177/1049909116677021
  17. Lou Y, Liu J. Racial disparities of possessing healthcare power attorney and living will among older Americans: do SES and health matter? J Pain Symptom Manage 2021;62:570-8.  https://doi.org/10.1016/j.jpainsymman.2021.01.004
  18. Moher D, Liberati A, Tetzlaff J, Altman DG; PRISMA Group. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. Int J Surg 2010;8:336-41.  https://doi.org/10.1016/j.ijsu.2010.02.007
  19. Higgins JPT, Deeks JJ, eds. Selecting studies and collecting data. In: Higgins J, Green S, Chchrane Collaboration. Cochrane handbook for systematic reviews of interventions. Chichester:John Wiley & Sons;2008. p. 151-85. 
  20. McAfee CA, Jordan TR, Sheu JJ, Dake JA, Kopp Miller BA. Predicting racial and ethnic disparities in advance care planning using the integrated behavioral model. Omega (Westport) 2017:0222817691286. Epup 2017 Jan 1. 
  21. Carr D. Racial and ethnic differences in advance care planning: Identifying subgroup patterns and obstacles. J Aging Health 2012;24:923-47.  https://doi.org/10.1177/0898264312449185
  22. Shrank WH, Kutner JS, Richardson T, Mularski RA, Fischer S, Kagawa-Singer M. Focus group findings about the influence of culture on communication preferences in end-of-life care. J Gen Intern Med 2005;20:703-9.  https://doi.org/10.1111/j.1525-1497.2005.0151.x
  23. Johnston FM, Neiman JH, Parmley LE, Conca-Cheng A, Freund KM, Concannon TW, et al. Stakeholder perspectives on the use of community health workers to improve palliative care use by African Americans with cancer. J Palliat Med 2019;22:302-6.  https://doi.org/10.1089/jpm.2018.0366
  24. Coogan A, Kimpel C, Jones AC, Barroso J, Frechman E, Maxwell CA. Perspectives on aging and end of life among lower socioeconomic status (SES) older adults. J Appl Gerontol 2022;41:1595-603.  https://doi.org/10.1177/07334648221081482
  25. Resnick B, Luisi D, Vogel A. Testing the senior exercise self-efficacy project (SESEP) for use with urban dwelling minority older adults. Public Health Nurs 2008;25:221-34. https://doi.org/10.1111/j.1525-1446.2008.00699.x