• Child Health Nursing Research
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• v.11 no.1
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• pp.72-82
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• 2005

Purpose: The purpose of this study was to develop a tool to assess the need for child hospice care in families of children with cancer. Method: The research design was a methodological study. The tool was developed in 4 stages : first, preliminary items were developed based on a questionnaire about the needs for child hospice care that was given to 20 families of children with cancer; second, a panel of specialists reduced the number of preliminary items using 3 validity tests for the content; third, final items were selected from the results of a pre-test. Finally, from February to July 2004, reliability and validity were tested with a sample of 104 families who had a child with cancer. Results: The final tool on the need for child hospice care consisted of 22 items and Cronbach's alpha coefficient for internal consistency was .93. Using factor analysis, 5 factors were extracted and these factors explained 69％ of the total variance. Conclusion: The instrument, for assessing the need for child hospice care in families of children with cancer, developed in this study was identified as a tool with a high degree of reliability and validity. In this sense, this tool can be effectively utilized for implementing and improving hospice care for children with cancer.

• The Journal of Korean Society for School & Community Health Education
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• v.12 no.2
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• pp.97-112
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• 2011

Objectives: The purpose of this study is to identify upper primary school children's knowledge and attitude about cancer, empathy, and attitudes about child with cancer, and to examine the relations between these variables and factors that influence. Methods: Methods: The participants included 474 fifth and sixth grade students. Data were analyzed using Pearson correlation coefficients, ANOVA and Tukey test with SPSS/WIN 18.0. Results: Mean scores were for knowledge about cancer 6.03 out of a possible 1, attitude about cancer 2.23 out of a possible 5, attitudes about child with cancer 1.11 out of a possible 3, and empathy 3.18 out of a possible 5. There were significant differences in knowledge about cancer according to school grades and parents' interest in health management. Attitude about cancer showed significant differences according to harmony of family life, worries about cancer, school life, academic achievement, school parents' interest in health management and cancer education. Empathy showed significant differences according to school grades, gender, school life, harmony of family life, and parents' interest in health management. Attitudes about child with cancer showed significant differences according to school grades, school life, and parents' interest in health management. Knowledge about cancer and empathy showed a positive correlation with attitudes about child with cancer. Knowledge and attitude about cancer, and empathy showed a significant influence on attitudes about child with cancer. Conclusion: Results of this study indicate that development of an appropriate knowledge and attitudes about cancer, and empathy by late school-aged children should lead to the positive attitudes about child with cancer.

• Korean Journal of Hospice Care
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• v.5 no.2
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• pp.54-63
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• 2005

The purpose of this study is to examine the requirement for child life support specialist and fetal education for children with cancer. This research presented was composed with three chapters : First chapter, I presented the purpose, scope and definitions of this research. Second chapter, I defined about hospice care service for children with cancer and kind of pediatric cancer. And general characteristics of children with cancer, a understanding character of death and dietary therapy. Lastly, I defined and investigated about spiritual care. Third chapter, I concluded with some of findings and final suggestions based on the results. According to the developmental stages children with cancer are disability of communication competence and more dependence on their parents, therefore parents' decision making were more difficulty. And parents with a child who suffers from a cancer needs a counseling in order to discover the meaning of life. Parents' psychological experience about the caring for their child suffering from pediatric cancer was equal to broken hearts due to shadow of the child's death from time to time. In other words a parents with a child who suffers from a cancer needs comprehensive services such as hospice, consultor as well as wide experienced pediatrician and nurse. Child life support specialist can help them recover and improve their o주 potential strength in behalf of overcoming their difficulties. And pastoral counseling can help them reduce the fear and anxiety about unknown world and death. The systematically developed a school-based counseling program would help children adjust to the difficulties after a perfect cure because of children adjusted to school well when they have good peer relationships.

• Child Health Nursing Research
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• v.11 no.2
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• pp.229-239
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• 2005

Purpose: The objective of this study was to provide an understanding of the difficulties for facing parents of children with terminal cancer. Method: The design of this study was an inductive and descriptive study. Thirty???]one parents of children with terminal cancer participated in???]depth were interviewed s. C in depth and content analysis was used for analyzing the data. Results: The main categories in the findings were 'difficulties in coping', 'physical and psychological suffering of children', 'suffering of family', 'bereavement with children', 'economic problems', 'incurable situation', 'preparation of death', 'social isolation', 'coping after a child dies', 'spiritual problems', receiving active treatment', 'informing children of their condition', 'a sense of meaninglessness', 'emotional iunstability', and 'giving up hope'. Conclusion: The main point identified from this result in this study was that parents who have a child with terminal cancer don't never give up the hope of recovery for their child even when the child is in by the terminal stage of their children, even though and they are unwillingly to prepare for their child's death. This is a unique characteristic in the attitude of the families' attitude in child hospice care and differs from that found in adult hospice care. This result can be used as an important guide for nurses to in assessing the parents' needs in the terminal care setting.

• Child Health Nursing Research
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• v.8 no.1
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• pp.44-54
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• 2002

The main purpose of this methodological study was to develop an assessment tool and intervention protocol for child and family with childhood cancer at early diagnosis stage. The assessment tool and intervention protocol was developed by extensive literature review and consultation with experts. Review of nine domestic and sixty-six international journal articles were done to identify stress, interventions, coping strategies and adjustment of children with cancer and their family. Results were as follows; First, assessment at the early diagnosis stage need to include information on patient, family, and patient/family attitude toward diagnosis and treatment. Second, intervention protocol for children with cancer includes control physical symptoms, manage the side effects of chemotherapy and diagnostic or therapeutic procedures, control emotional responses, provide support and information, assist decision-making and adjust to environment. Third, intervention protocol for family includes controlling emotional responses, provision of informations, inducing family support to patient, improving family cohesion, supporting siblings and supporting spiritual growth. In conclusion, the early diagnosis stage in cancer treatment is important for child and family since this stage greatly affects the overall adjustment of child and family to live with cancer. Therefore, pediatric nurses need to be sensitive to the need of patient/family and systematically manage their needs at this stage.

• Asian Pacific Journal of Cancer Prevention
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• v.15 no.4
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• pp.1731-1738
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• 2014

The life of a mother undergoes a dramatic change after a child is diagnosed with cancer. The present study aimed to determine effects on the everyday life process and health status of mothers with children suffering from leukemia. This qualitative study was based on a grounded theory approach with sixteen mothers. The results indicate that after onset of disease in their children, they marginalized their own health and tied their identities to taking care of the child and keeping the child healthy by ignoring themselves, becoming imprisoned in a taking-care-of-the-child position, and trying very hard for seek balance and stability Enduring physical pressures on the one hand, and constantly attempting to achieve balance and stability in family processes on the other hand, gradually cause exhaustion. It seems that health care providers and nurses should pay much more attention to the health status of this group of mothers.

• Child Health Nursing Research
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• v.12 no.2
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• pp.268-276
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• 2006

Purpose: this study is attempted to provide basic data on development of systematic discharge educational programs for discharging cancer patients. Method: The subjects of this study were 132 mothers whose children were diagnosed with cancer and being treated at 3 university hospitals in Busan. The data were collected from December 1 to February 28, 2005, and were analyzed Using SPSS WIN 10.0. Result: The degree of education at the time of discharge from hospital was statistically significantly lower than that of educational demand after the discharge. Such demand significantly varied in accordance with the length of period passed after the discharge. Mother’s educational demand was significantly different in accordance with generation characteristics of her child with cancer, especially the first period of hospitalization and change in weight Conclusions: mothers of children with cancer were higher in educational demand after the child’s discharge from hospital than in education provided at the time of the discharge. Such demand was different in accordance with the length of period passed after the child's discharge from hospital.

• Child Health Nursing Research
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• v.11 no.4
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• pp.465-471
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• 2005

Purpose: The purpose of this study was to identify the self-image of adolescents with cancer. Method: This study was a descriptive study. The participants in the study were 75 adolescents recruited from four medical centers in Seoul and all were receiving cancer therapy Korean Offer Self-Image Questionnaire was used and data were analyzed using the SPSS program. Result & Conclusions: The self-image of adolescents with cancer exists within the average range, but all groups of adolescents with cancer had a more positive self-image than Korean reference groups. The reason why adolescents with cancer showed a relatively positive self-image despite their painful experiences, is because they developed new value systems and view point through their experiences and teaming to cope with their situation. This research revealed that relapse affects the self-image of adolescents and therefore it is important to note that adolescents with relapses need more intensive interventions to maintain their positive self-image. In order to help with their coping process, further research on the factors that affect self-image in adolescents with cancer is also needed.

• Journal of Korean Academy of Nursing
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• v.24 no.4
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• pp.529-544
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• 1994

For most parents their child's illness and hospitalization is strssful. Internal stress and over anxiousness leads to uncertainty. Parents have a variety of ways of coping when faced with such stress factors, especialy when the child has cancer. The purpose of this study was to examine the relationship between uncertainty in illness and mastery and coping styles in parents of pediatric cancer patients, and further to identify differences between three groups of subjects. A cross-sectional descriptive correlational design was used in this study to investigate the relationship among the three groups. The sample was composed of 59 parents of children with cancer in pediatric wards in three hospitals in Seoul : 21 in Group 4 with a child newly diagnosed with cancer : 25 in Group B, with a child under treatment and rehospitalized with a relapse : and 13 in Group C, with a child with a terminal cancer, A formalized questionnaire which included demegrapic information and consisted of 75 items was used in this study ; The Parent Perception of Uncertainty Scale(PPUS) adapted form Mishel’s Uncertainty in Illness Scale, Pearlin & Schooler's Mastery Scale(MS) and Folkman & Lazarus’s Ways of Coping Checklist(WCC) were used to measure the variables : uncertainty in illness, mastery, and coping styles. A pretest was conducted on the questionnaire items for reliability. The results gathered were analyzed using SPSS /PC/sup +/. Data analysis included descriptive correltional statistics such as ANOVA, Pearson Correlation Coefficient, amd chi square test. The conclusions of this analysis are summarized as follows : 1. A higher level of uncertainty was seen among parents of children with terminal cancer. 2. The first hypothesis that uncertainty in illness would differ among the three groups was supported(F=4.182, P=.020). The second and third hypotheses that mastery and coping styles would differ among the three groups were not supported. There was a correlation between uncertainty, mastery, and coping styles which was positive, also there was a positive correlation between mastery and coping style(r=.3744, P<.001) but a negative correlation between uncertainty md mastery(r=-.4749, P<.01). From the above results, it can be concluded that prediciting and controlling uncertainty in illness by considering coping styles and mastery are necessary for improved, efficient nursing interventions.

• Asian Pacific Journal of Cancer Prevention
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• v.16 no.2
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• pp.523-529
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• 2015

Background: This study was planned in an attempt to develop a scale for the quality of life in pediatric oncology patients aged 7-12, with child and parents forms. Materials and Methods: In collecting the study data, we used the Child and Parent Information Form, Visual Quality of Life Scale, Scale for Quality of Life Pediatric Oncology Patients Aged 7-12 and the Scale for the Quality of Life in Pediatric Oncology Patients Aged 7-12 for Parents. We also used Pearson correlation analysis, the Cronbach alpha coefficient, factor analysis and ROC analysis for the study data. Results: In this study, the total Cronbach alpha value of the parent form was 0.96, the total factor load being 0.54-0.90 and the total variance explained was 82.5%. The cutoff point of the parent form was 93 points. The total Cronbach alpha value for the child form was 0.96, with a total factor load of 0.55-0.91 and the total variance being explained was 78.3%. The cutoff point of the child form was 65 points. Conclusions: This study suggests that the Scale for Quality of Life in Pediatric Oncology Patients Aged 7-12 Child and Parents Forms are valid and reliable instruments in assessing the quality of life of children.